Why I Donate to the Fibromuscular Dysplasia Society - FMDSA

May is Fibromuscular Dysplasia Awareness month.  So, during May I am donating 20% of sales of any ‘Tree of Life’ jewelry items and 10% of any other item sales to the Fibromuscular Dysplasia Society of America to help further research on this disease and to increase awareness of FMD.

Briefly, FMD is a rare / under-diagnosed disease that most often affects women in which some arteries in the body look like a ‘string of beads’ (wide, narrow, wide, narrow).  The affected vessels are either weakend or stiffened. Depending on where they are in the body, this can cause high blood pressure, aneurysms, stroke and dissected arteries.  A dissection of an artery in the heart can lead to a type of heart attack (without the presence of heart disease) called a sudden coronary dissection, known as SCAD.
 
Often people with FMD do not have any symptoms or signs on physical examination and are diagnosed by accident during a radiology scan for another problem or when they have a serious symptom.
 
I recently had one of those serious symptoms. I had a SCAD heart attack (not caused by heart disease) and was also diagnosed with FMD. I was away from home at the time, but lucky be near a hospital where they knew about these rare conditions.  I have been laying low and wrapping my head around these diagnoses. I am getting back to my new normal.
 
A special pendant and bracelet were made especially for this fundraiser:

For more information on FMD, visit FMDSA.org and for more information on SCAD, visit scadalliance.org

 

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